Lymphoma Educational Resources

We know the news of your diagnosis can be overwhelming. You may feel a number of emotions –  shock, denial, helplessness, anger. Those are natural feelings, and it's important to express them. The staff at The James will help you focus on the next steps –  your treatment and follow up care.

Your visit to The James after diagnosis will involve meeting with a nurse coordinator, who will help you register and then take your vitals, such as blood pressure and weight. This nurse is available to answer your questions about treatment, lab tests and any number of concerns you may have.

If you'll be receiving chemotherapy, the nurse will provide you with a chemotherapy packet, which includes a calendar with the dates of your scheduled therapies and prescribed supportive medications. Your nurse will also talk with you about your treatment and will help you write down questions to ask your doctor. Read more about what to expect on your first visit

You will also be given patient information related to your diagnosis. Some of these materials are from the OSU Medical Center's Library for Health Information on the 5th Floor Atrium of Rhodes Hall. The library offers a number of patient education materials on health topics, diseases and other conditions. You are welcome to contact the library at 614-293-3707 or health-info@osu.edu to order additional materials. Your nurse will also provide you with The James' materials and patient information from other resources.

Patient Materials
The Jamesinformation packets
These packets include information to help you understand and track your treatments and lab work. See the chemotherapy information packet, which includes:

  • Blood work records
  • How to manage side chemotherapy effects
  • Learn about clinical trials

Lymphoma-related Web Sites
American Academy of Dermatology
Offers a skin cancer screening locator data base.

American Cancer Society
Patient education materials about non-Hodgkin’s lymphoma, including treatment and a host of Web resources. (800) ACS-2345

Cutaneous Lymphoma Foundation
An independent, non-profit patient advocacy organization, the Cutaneous Lymphoma Foundation provides information on diagnosis, treatment and research for patients diagnosed with mycosis fungoides, Sezary syndrome and other forms of cutaneous T-cell lymphomas.

Lymphoma Information Network
A comprehensive patient guide to adult and childhood Hodgkin’s and non-Hodgkin’s lymphomas.

Macmillan Cancer Support
Patient cancer support Web site from the United Kingdom listing various treatments and information about cancer.

Medicinenet.com
Provides extensive information about Non-Hodgkin’s disease.

National Cancer Institute
Includes patient and physician-directed information, and clinical trials resources.
(800) 4-CANCER or (800) 332-8615 (TTY)

NetWellness Consumer Health Information

See the American Cancer Society for information about non-Hodgkin’s Lymphoma in children.

Clinical Trials
American Cancer Society/EmergingMed Clinical Trials Matching Service
This clinical trial matching and referral site is sponsored by the American Cancer Society and EmergingMed.

Centerwatch
This is a privately-sponsored clinical trial listing service that offers matching and referrals.

Coalition of National Cancer Cooperative Groups
Includes clinical trials information for patients and caregivers as well as a link to the TrialCheck clinical trial matching services.

Mycosis Fungoides Foundation
Information on clinical trials specifically for mycosis fungoides.

National Cancer Institute
This NCI site includes separate summaries of clinical trials for patients and healthcare professionals.

National Library of Medicine/National Institutes of Health
This site includes information on a myriad of lymphoma trials and includes National Cancer Institute, institutional and industry-sponsored trials. If you have concerns navigating the trials, contact the Lymphoma Research Foundation

OSUCCC Clinical Trials Matching Service
Free clinical trial matching and referral service

Patient Support
JamesCare for Life
JamesCare for Life provides a wide range of resources and services to assist patients and families.

Lymphoma Research Foundation
A lymphoma patient support foundation that conducts research, offers lymphoma information and runs a one-to-one peer support program that matches lymphoma patients or caregivers with volunteers who have faced a similar type of lymphoma, treatment or challenge.

Non-Hodgkin's Lymphoma Cyberfamily
A list of resources and patient information sponsored by a nonprofit organization founded by families of patients and caregivers who have non-Hodgkin's lymphoma.  Includes a printable form on questions to ask the doctor.

Research
Cutaneous Lymphoma Foundation 
An independent, non-profit patient advocacy organization, the Cutaneous Lymphoma Foundation sponsors research on cutaneous T-cell lymphomas.

Lymphoma Research Foundation 
The Lymphoma Research Foundation is the nation’s largest lymphoma-focused voluntary health organization devoted exclusively to funding lymphoma research and providing patients and healthcare professionals with information on the disease. The LRF has funded more than $24 million in lymphoma research.

The Ohio State University Comprehensive Cancer Center – Arthur G. James Cancer Hospital and Richard J. Solove Research Institute (OSUCCC – James) 300 W. 10th Ave. Columbus, OH 43210 Phone: 1-800-293-5066 | Email: jamesline@osumc.edu