What to expect when you visit The James
Your visit to The James after diagnosis will involve meeting with a nurse coordinator, who will help you register and then take your vitals, such as blood pressure and weight. This nurse is available to answer your questions about treatment, lab tests and any number of concerns you may have.
If you'll be receiving chemotherapy, the nurse will provide you with a chemotherapy packet, which includes a calendar with the dates of your scheduled therapies and prescribed supportive medications. Your nurse will also talk with you about your treatment and will help you write down questions to ask your doctor. Read more about what to expect on your first visit.
You will also be given patient information related to your diagnosis. Some of these materials are from the OSU Medical Center's Library for Health Information on the 5th Floor Atrium of Rhodes Hall. The library offers a number of patient education materials on health topics, diseases and other conditions. You are welcome to contact the library at 614-293-3707 or firstname.lastname@example.org to order additional materials. Your nurse will also provide you with The James' materials and patient information from other resources.
These packets include information to help you understand and track your treatments and lab work. See the chemotherapy information packet, which includes:
• Blood work records
• How to manage chemotherapy side effects
• Learn about clinical trials
Myeloma Related Web Sites
Multiple Myeloma Research Foundation (MMRF)
Founded in 1998 by twin sisters Karen Andrews and Kathy Giusti following Kathy’s diagnosis of multiple myeloma, the MMRF funnels 92% of dollars raised to support myeloma research. It organized the Multiple Myeloma Research Consortium, of which Ohio State is a member, in order to rapidly bring new agents to the clinic and evaluate their effectiveness.
International Myeloma Foundation (IMF)
The IMF is committed to providing information about myeloma research, treatment advances, and support and advocacy programs. A quarterly journal Myeloma Today provides current treatment options as well as highlighting survivorship issues.
Multiple Myeloma Opportunities for Research and Education (MMORE)
MMORE is a local nonprofit organization committed to supporting medical research at The James that will find effective treatments and a cure for multiple myeloma.
American Cancer Society
Patient education materials about non-Hodgkin’s lymphoma, including treatment and a host of Web resources. (800) ACS-2345
Leukemia and Lymphoma Society
The Society’s Web site offers specific information on each blood cancer, as well as general facts and statistics on each disease for the current year.
National Cancer Institute
Includes patient and physician-directed information, and clinical trials resources.
(800) 4-CANCER or (800) 332-8615 (TTY)
International Waldenstrom’s Macroglobulinemia Foundation
The IWMF was started in 1994 and provides the best online resource for information regarding diagnosis, treatment and patient resources.
Ohio Myeloma Initiative
The Ohio Myeloma Initiative is a statewide collaborative research study with the goal to enroll every plasma cell dyscrasia patient in Ohio. Information about the diagnoses, staging and treatment of all enrolled patients are captured in a database, providing researchers with a tremendous amount of information to research these diseases to improve quality and length of life.